ABOUT KATHERINE DORMANDY TRUST
www.kdtrust.org.uk
Haemophilia is a general term for a group of blood disorders where a defect in the clotting mechanism of the blood clotting partly or completely breaks down. This leads to people having spontaneous and prolonged bleeding usually in the joints, muscles and soft tissue. Haemophilia is found in males, but is inherited from female carriers - if a father suffers from haemophilia then his daughter will carry on the disorder. In around one in three cases there is no previous family history and it affects all racial groups worldwide.
For more than 30 years the Katharine Dormandy Trust for Haemophilia and Allied Disorders (KD Trust) has funded research, equipment, clinics and training projects aimed at improving treatment and care to eliminate the suffering of those affected by haemophilia and related bleeding disorders.
Through careful targeting of funds the KD Trust concentrates its efforts on:
- Supporting and promoting laboratory training and development. The KD Trust offers grants to UK specialists to organise and lead workshops and courses aimed at helping to improve and develop the laboratory skills, knowledge and expertise of clinicians and technologists in developing countries - where 70% of people with haemophilia remain undiagnosed and, of those who are, at least 75% do not have access to any current treatment.
- Offering cash, expertise and time to develop groundbreaking ideas and research projects. Many of these projects are working towards unlocking some of the scientific understanding of this very complex, and oldest recognised lifelong, genetic condition.
For more information see www.kdtrust.org.uk or call 0845 601 9211